Rapid Review of Models of Palliative Care for People with Advanced Dementia

The Central Coast is located in New South Wales (NSW), Australia. Nearly 350,000 residents reside on the Central Coast (Australian Bureau of Statistics, 2022). Population projections estimate numbers will rise to over 375,000 persons by 2031, with the most rapid growth in persons aged 70 years and over (Central Coast Local Health District, 2021). Population ageing is expected to drive increased demand for aged, dementia-specific, and palliative care services on the Central Coast.

In the 2021 Census, 1.1% of Central Coast adult residents reported that they have dementia as a long-term health condition, (compared to 0.8% of the NSW population) (Australian Bureau of Statistics, 2022). People with dementia have different care and support needs at their end of life compared to people with other life-limiting illnesses and are seen less frequently by palliative care services (Parker et al., 2017). A rapid review of published and grey literature was undertaken to inform development of a local dementia-specific model of palliative care by identifying and summarising existing best-practice models of care for people with advanced dementia.

Lewis S, Curryer C, Triandifilidis Z, Carr S, Davis D, Jeong S Y-S, Goodwin N. Rapid Review of Models of Palliative Care for People with Advanced Dementia: Report (1.32MB pdf). Gosford, NSW: Central Coast Research Institute for Integrated Care; 2023. https://ccri.asn.au/

For further information, contact the Central Coast Research Institute for Integrated Care. Email: ccri@newcastle.edu.au

Related publication
This report is an expanded version of the following publication: Lewis, S., Triandafilidis, Z., Curryer, C., Jeong, S. Y.-S., Goodwin, N., Carr, S., & Davis, D. (2023). Models of care for people with dementia approaching end of life: A rapid review. Palliative Medicine, 37(7), 915-930. https://doi.org/10.1177/02692163231171181