Studies by Methodology

View Research Studies listed by Methodology including:

• Epidemiological
• Health Service / Health Economics / Quality Assurance / Audit (if no intervention)
• Qualitative, Observational or Descriptive
• Mixed Method
• Systematic Review
• Intervention - Randomised Control Trial
• Intervention - Comparative or Cohort Study
• Intervention - Case Series

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Epidemiological

• Application of a clinical typology for terminal restlessness
• Epidemiological study of patterns of hospitalisation in patients who die with chronic obstructive pulmonary disease (COPD).
• Last days of life linkage study: Patterns of health services use and experiences of NSW residents in the year prior to death (NSW end-of-life study).
• Patient outcomes in palliative care – a national perspective of malignant and non-malignant diseases

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Health service / health economics / quality assurance / audit (if no intervention)

• Assessment of post-operative pain management in patients undergoing surgery in a cancer hospital: An audit using the VQC Pain Assessment Tool-kit
• A structured approach to evidence based quality improvement for  palliative care
• A systematic review of effectiveness of decision aids to assist older patients at the end of life
• A very public death - Exploring the needs of a person dying of mesothelioma or asbestos related lung disease
• Bayside Palliative Carers Support Group
• Caring communities: Evaluation of a national palliative care program
• Development of a statewide coordinated specialist and generalised palliative medicine training program
• Enhancing community knowledge and engagement with law at the end of life
• Evaluation of a tool for general practitioners:  Helping Patients And Families Plan For An Expected Home Death:  The GP’s Checklist
• Evaluation of the Care Planning sub-program of the Local Palliative Care Grants Program
• Evaluation of the Program of Experience in the Palliative Approach (PEPA)
• Evaluation of the Rural Palliative Care Program
• Expectations and barriers in the ambulance service and palliative care interface
• Exploring the palliative care needs of veterans at home
• Helping family caregivers of palliative care patients manage their role: Evaluation of a hospital based group education intervention
• Implementation of a comprehensive evidence based palliative approach in Residential Aged Care (CEBPRAC)
• Improving end-of-life care at Canossa
• Improving palliative care services for adolescents and young adults with cancer
• Improving the psychological wellbeing of family caregivers of home based palliative care patients: A randomised controlled trial
• Integrated Mental Health and Palliative Care Task (IMhPaCT)
• IPP-SHR and Redland Hospital Collaboration - Ethical decision making in a health care setting including findings on end of life care
• Linking the parts: - Articulating the role of consultant palliative care nurses in acute hospitals
• National Specialist Palliative Care and Advance Care Planning Advisory Services Project (Decision Assist)
• Northern Hospice Feasibility Study, Final Report, Department of Health and Human Services Tasmania
• Older women's experiences of widowhood in the first twelve months following bereavement
• Opioid Conversion Ratios: Is there an Australian consensus
• Palliative Care Needs Assessment Program: dissemination of the Palliative Care Needs Assessment Guidelines and Needs Assessment Tool: Progressive disease - cancer (NAT:PD-C)
• Palliative Care Outcomes Collaboration
• Pre-existing risk factors for in-hospital death among older patients could be used to initiate end-of-life discussions rather than Rapid Response System calls: A case-control study
• Retrospective and prospective audit of gabapentin and pre-gablin prescribing for neuropathic pain in a major cancer hospital
• Retrospective medical record audit and analysis of the clinical journeys of 100 consecutive deaths for any oncology patient at St. George Hospital
• Speech-language pathology in paediatric palliative care: A scoping review of role and practice
• Survey of hospice and palliative care bereavement services in Australia
• The development of a model of care for haematology and palliative care
• The long goodbye
• The Praecox Program: Development of a national program to support neonatal palliative care in the clinical area
• Toward the identification and minimisation of depression and psychological distress in family caregivers of people receiving palliative care
• Validation of a clinical tool to predict death in older patients presenting at hospital emergency departments
• Withholding and withdrawing life-sustaining medical treatment from adults who lack capacity: The role of law in medical practice

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Qualitative, observational or descriptive

• Accompanying them home : the ethics of hospice palliative care
• An audit of the incidence, mechanism, aetiology and management of nausea and vomiting in patients at a comprehensive cancer centre
• An international multi-centre validation study of a pain classification system for advanced cancer pain
• Anonymous survey study examining acceptability and preferences for route of administration in a future clinical trial
• A phenomenological exploration of the lived experience of malignant wounds from the perspective of patients, carers and nursing staff.
• Application of a clinical typology for terminal restlessness
• A qualitative exploration of the needs of patients with severe COPD (chronic obstructive pulmonary disease)
• Assessing the impact of 'catastrophizing' on the measurement of pain intensity in cancer patients
• Attitudes to providing blood transfusions in the last 3/12 of life: The views of Palliative care Physicians, Oncologists, Haematologists and PalIiative care nurses
• A very public death - Exploring the needs of a person dying of mesothelioma or asbestos related lung disease
• Bayside Palliative Carers Support Group
• Bereavement Counselling Outcome Assessment Tool (The BOAT Study)
• Calvary Hoarding and Squalor Project
• Caregivers' expectations and experiences of the use of home oxygen in the palliative setting
• Caring communities: Evaluation of a national palliative care program
• Determining eHealth literacy levels
• Developing self management strategies to reduce avoidable Emergency Department presentations for chronic refractory breathlessness: a strengths based approach using qualitative methods
• Dying in pain: a pilot study
• Dying in the place of choice: End of life care in private hospitals
• End of life care for patients with dementia in hospital
• End of Life Care in an Urban Emergency Department: Optimising the care delivered for patients when death occurs in emergency departments 
• Evaluation of a volunteer-based client biography service
• Evaluation of an information booklet for family carers of people with dementia
• Evaluation of the Care Planning sub-program of the Local Palliative Care Grants Program
• Evaluation of GP webpages of the CareSearch website
• Evaluation of the Rural Palliative Care Program
• Facilitating discussions on advance care planning in caregivers of cancer patients using the vignette technique (part 1 of 2 part study)
• Facilitating discussions on treatment preferences and advance care planning in cancer patients using the vignette technique
• Factors Contributing to Job Satisfaction, Dissatisfaction and Burnout for Oncology and Palliative Care Nurses
• General practitioners & palliative care study
• General practitioners' perceptions of their role in cancer care and factors which influence this role
• How do GPs provide palliative care in rural and remote Queensland?
• How lay carers regard and use the Internet as a source of support information
• Identifying the barriers to access to palliative care services by patients from a CALD background: A chart audit of 100 CALD deaths at CHCK
• Implementation of a comprehensive evidence based palliative approach in Residential Aged Care (CEBPRAC)
• Improving palliative care services for adolescents and young adults with cancer
• Improving the welfare and end of life experience for residents, families and staff: A case conferencing approach for older people living with advanced dementia or mental illness
• Information and communications technologies (ICT), eHealth literacy, individual differences in thinking dispositions and retention and academic performance in postgraduate palliative studies
• Informing the development of a model of care for patients with end stage chronic obstructive pulmonary disease (COPD): What are their care needs and are they being met?
• IPP-SHR and Redland Hospital Collaboration - ethical decision making in a health care setting including findings on end of life care
• Life threatening cancer across the lifespan: Examining the relevance of music to patients and their companions
• Listen Acknowledge Respond
• Living and dying at home with dementia: who decides?
• Measuring hope and hopelessness in cancer
• Memory making in neonatal end-of-life care
• Needs based access to specialist palliative care services: development and preliminary evaluation of a consumer toolkit
• Older women's experiences of widowhood in the first twelve months following bereavement
• Palliative care -life space assessment (PC-LSA) validation
• Palliative Care Needs Assessment Program: Generalising cancer needs based resources to heart failure
• Palliative care search strategy validation
• Palliative nursing in residential aged care
• PEACE study: Preparedness for End-of-life And other Conversations including Euthanasia
• Prescribing considerations for home oxygen use
• 1. Prospective audit of clinical efficacy and adverse effects of ketamine in the management of cancer pain    2. Clinical use, efficacy and adverse effects of ketamine in the management of cancer pain at Peter MacCallum Cancer Centre - a retrospective chart audit
• Prospective study of predictors of the diagnosis of delirium or future development of the delirium: the association between serum anticholinergic levels and diagnosis or future development of delirium in palliative care patients with advanced cancer
• Relevance of Peter Mac's staff Christmas choir to patients, visitors, and staff
• Seeing the unseen: an exploration of reluctance to care in lay carers of cancer patients
• STrategies to decrease pain thrOugh implementing a duel clinical PAIN PATHway. Stop Pain Path Phase 1
• The development of a model of care for haematology and palliative care
• The influence of undergraduate palliative care attachments on medical practice: A qualitative study of junior doctors
• The long goodbye
• The Partners and Caregivers Study: A longitudinal study of the psychosocial outcomes of the partners/caregivers of cancer survivors
• The Psychosocial Impact of Food and Nutrition on Palliative Care Patients and their Carers
• The relevance of music for adolescents and young adults (15-25 years) diagnosed with cancer
• The Supportive Care Needs Survey for partners and caregivers of cancer survivors: Development and psychometric evaluation
• Upfront Family Meetings for Community Palliative Care Services
• Upfront Family Meetings for in-patient Palliative Care Services
• Use of Methylnaltrexone for opioid induced constipation in usual clinical setting
• Validity, reliability and clinical feasibility of a Needs Assessment Tool for people with progressive cancer
• What factors influence the use of advance directives by Baby Boomers in South Australia?
• What are the decision-making processes that underpin the self-management of persistent pain?
• "What happens after dark?" Improving "after hours" palliative care planning in urban and rural Victoria.
• Who grieves? The patient perspective

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Mixed method

• Adelaide Hills Palliative Care Project (National Rural Palliative Care Program)
• A palliative approach for people with declining health, living in hostel accommodation: the state of play
• A study of the integration of health promotion principles and practice in palliative care organisations
• A study to assess the grief experienced by registered nurses and care aides who work in community palliative care and to identify suitable strategies for support
• Bayside Palliative Carers Support Group
• Can death from chronic life-limiting illnesses be predicted in Australian general practice? A study exploring the feasibility and acceptability of a case finding approach to patients nearing the end-of-life
• Caring Communities: Evaluation of a National Palliative Care Program
• Costs of Care search resource
• Decision making frameworks in advanced dementia: Links to improved care
• Development of the Stroke Search Filter
• Effect of supportive engagement through MOOC participation on death awareness and death attitudes
• Evaluation of a volunteer-based client biography service
• Evaluation of the Care Planning sub-program of the Local Palliative Care Grants Program
• Evaluation of the Living Well Dying Well (LWDW) pilot program and the Cradle Coast Connected Care Electronic Health Record (4CEHR) system, Final Report, Department of Health and Human Services Tasmania
• Evaluation of the Rural Palliative Care Program
• Exploration of the requirements and feasibility for a Victorian Palliative Care Research Collaborative
• “Finding Hope and Meaning at a time of Uncertainty”
• Futile treatment at the end of life: legal, policy, sociological and economic perspectives
• Group education program for family caregivers of home based palliative care patients
• Home-based care for advanced cancer patients: the impact on family carers
• Implementing principles of end-of-life care in acute care settings
• Improving medication management of palliative care patients: Enhancing the role of community pharmacists
• Improving palliative care services for adolescents and young adults with cancer
• Improving the welfare and end of life experience for residents, families and staff: A case conferencing approach for older people living with advanced dementia or mental illness
• Integrated Mental Health and Palliative Care Task (IMhPaCT)
• Liverpool Care Pathway project
• Living and dying at home in rural Australia: the district nursing role of advocacy
• Managing diabetes at the end of life
• Mapping Grief Study: The experience of care, grief and adjustment for family members bereaved after a coronial or palliative care death
• Objective assessment of the trajectory of the course of illness for end of life non-cancer related diseases - biological, social and environmental determinants
• Older women's experiences of widowhood in the first twelve months following bereavement
• Palliative care dementia interface: Enhancing community capacity
• Palliative care education: Does it influence future practice?
• Residential - Palliative Approach Competency Study (R-PAC Study)
• Seeing the unseen: an exploration of reluctance to care in lay carers of cancer patients
• The effect of self-selected music on adults' anxiety and subjective experience during their first radiotherapy treatment
• The development and implementation of an evidence-based palliative care teaching program for hospital junior medical staff
• The evaluation of models of community after hours palliative care
• The impact on mental health of frequent deaths that occur in high care in aged care settings, on individuals and the resident community
• The long goodbye
• The SAC Study - Sleep in Australian Caregivers: Evaluating the sleep disturbances of adults caring for a person living with advanced cancer in the community
• The SELF-CARE Study: Self-care in the palliative care workforce, and its relationship to self-compassion for others
• The VOICE Study: Valuing Opinions, Individual Communication and Experience: Building the evidence base for undertaking patient-centered family meetings in palliative care: A mixed methods study
• Toward optimal facilitation of family meetings in palliative care
• Views and experiences of Allied Health professionals about palliative care, and about the CareSearch Allied Health Hub (AHH) and newsletter
• "What happens after dark?" Improving "after hours" palliative care planning in urban and rural Victoria
• What is the effect of Transitioning Hospice patients in the end stages of their life to Residential Aged Care Facilities?
• What is the impact of a Flinders University postgraduate palliative care course on the professional lives of alumni and on their ability to change work practice?

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Systematic review

• A systematic review of patient report of deathbed phenomena
• Comparison of palliative care outcome measures used to assess the quality of palliative care provided in residential aged care facilities: A systematic review
• Delirium prevalence, incidence and implications for screening in specialist care inpatient settings: a systematic review
• Evaluation of a volunteer-based client biography service
• How do clinicians learn about Knowledge Translation? Examining the online opportunities
• Improving palliative care services for adolescents and young adults with cancer
• Integration, coordination and multidisciplinary care - Findings from the literature
• Non-beneficial treatments (NBTs) in hospital at the end of life
• The Palliative Management of Patients with Creutzfeldt-Jakob Disease (CJD)
• "What happens after dark?" Improving "after hours" palliative care planning in urban and rural Victoria.

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Intervention - randomised control trial

• A double-blind, randomised, placebo-controlled titrated dose pilot study of sertraline in people with refractory breathlessness
• A double-blind, dose-ranging study to determine the optimal dose of oral morphine or oxycodone needed to treat breakthrough pain for people on regular opioid in the palliative care setting
• Acceptance and valued-living in palliative care patients, caregivers and significant others
• A multi-centre randomised double-blind controlled trial of oxygen versus air for the relief of breathlessness in terminally-ill patients with intractable dyspnoea and Pa02>55mmHg
• A prospective, randomised, placebo-controlled, double-blind, cross-over study of the efficacy of sustained-release low dose morphine in the subjective sensation of dyspnoea due to maximally treated primary pulmonary hypertension in opioid naive participants
• A randomised, double-blind, multi-site, parallel arm, controlled trial to assess relief of refractory breathlessness comparing fixed doses of morphine and placebo
• A randomised, double-blind placebo controlled study of subcutaneous ketamine in the management of cancer pain
• A randomised, double blind, placebo, controlled trail of infusional subcutaneous octreotide in the management of malignant bowel obstruction in people with advanced cancer
• A randomised, open-label, single centre, cross-over study to assess the safety and efficacy of methoxyflurane (PenthroxTM) for the treatment of incident pain in patients undergoing radiotherapy
• Assessing the efficacy and cost-effectiveness of targeted nurse-led advance care planning interventions among patients with severe respiratory disease in a metropolitan tertiary hospital and in a rural setting
• A two-stage trial of antiemetic therapy in patients with cancer and nausea not related to anticancer therapy  Study 1: A randomised open label study of guideline–driven targeted antiemetic therapy versus single agent antiemetic therapy 
• A two-stage trial of antiemetic therapy in patients with cancer and nausea not related to anticancer therapy.
  Study 2: A randomised controlled double blind study of levomepromazine versus placebo with rescue antiemetics (best supportive care) in patients with refractory nausea
• Cancer pain education for patients
• Can the needs of caregivers of patients with advanced cancer be met using a GP Caregiver Needs Toolkit?
• CARE-IS Study – Care-IS Trial: A randomised controlled trial of a supportive educational intervention for caregivers of patients with high grade glioma
• Evaluating novel methods for delivering non-pharmacological interventions for dyspnoea in patients with lung cancer
• Fan activity and breathlessness(FAB)Study
• Improving paediatric palliative care for rural and remote families: A randomised controlled pilot study of videotelephony
• Oxygen to relieve dyspnoea in non-hypoxaemic patients with end-stage heart failure (Oxygen-HF)
• Randomised, controlled, double blind study of oral methotrimeprazine versus oral haloperidol in patients with cancer and nausea not related to anticancer therapy (Nausea study 3)
• Randomised, control trial of oral risperidone, oral haloperidol, and oral placebo with rescue subcutaneous midazolam in the management of delirium in palliative care inpatients
• Randomised, double blind control trial of megestrol acetate, dexamethasone and placebo in the management of anorexia in people with cancer
• REACH out in Dementia
• So many questions
• Spaced education: As a tool to help translate pain assessment and management evidence into routine cancer care practice
• Spaced education in the specialist palliative care setting: Exploring its potential to improve pain management
• The Stop Cancer PAIN Trial
• The use of levomepromazine in palliation (TULIP)
• Trial of supportive care strategies for cancer patients in NSW.

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Intervention - comparative or cohort study

• A comprehensive discharge planning strategy to enhance hospital-to-home transition for patients with life limiting illness: Optimizing communication across primary-secondary settings
• Evaluation of a palliative care needs assessment intervention
• Evaluation of the palliative care needs assessment intervention
• Opioids in dyspnoea - An open label, prospective, dose ranging effectiveness study of sustained-release opioids in the subjective sensation of dyspnoea in opioid naive patients in the palliative care setting.

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Intervention - case series

• Sedation and analgesia in unconscious palliative care patients: can BIS monitoring add to our understanding?

Last updated 27 April 2017